Your Illness, Your Journey, Your Life

Being diagnosed with an illness is hard, it is the unknown. You go from being healthy to labelled overnight. Okay, so it isn’t exactly overnight. You often live with symptoms for a long time before formal diagnosis, years for some people. Rheumatoid Arthritis and other autoimmune illnesses are often misdiagnosed or dismissed in the early…

Smoke and Mirrors

Social media is a fantastic way of reaching millions of people, a way of providing a community and a platform for sharing ideas and experiences. However, we have to take caution when considering our life in comparison to what we see via these platforms. We should view what we see on social media as the…

Spoon theory

A year or so ago I watched a TED talk on disability and something the speaker said really resonated with me. I cannot walk in your shoes, and you cannot walk in mine. It didn’t interpret this statement as a bitter, ‘you don’t understand’ kind of statement. I took this as completely true, true for…

R&R (Rheumatoid Arthritis & Relationships)

Chronic illness can impact both the relationship you have with yourself and the relationship you have with others. One of the things I found hardest when diagnosed with RA and the start of my eye operations was coming to terms with the fact that life wasn’t going to play out as I had imagined. In…

Managing your Mind whilst Battling your Body

In a nod to Mental Health Awareness Week 2018 I thought I would write a post on mental health. Mental and physical health are intrinsically linked. It is thought that as many as 1 in 3 people with chronic illness also have mental ill health. I wouldn’t want to do disservice to those individuals that…